SC to hear pleas over Rs 50 lakh cap on Centre aid for rare diseases

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The story "SC to hear pleas over Rs 50 lakh cap on Centre aid for rare diseases" was covered 2 weeks ago by Business Standard, a news publisher based in India.

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SC to hear pleas over Rs 50 lakh cap on Centre aid for rare diseases - Business Standard

Quick Summary:

The Supreme Court on Tuesday decided to examine pleas challenging the Rs 50 lakh cap on Centre's assistance for treating patients suffering from rare diseases like spinal muscular atrophy (SMA).

The bench said pharma firm M/s F Hoffmann-La Roche Ltd, which manufactures the SMA drug Risdiplam priced at Rs 6.2 lakh a bottle, had agreed to supply the medicine for free for a year to 24-year-old Seba PA, who hails from Kerala, and suffers from the disorder.

A bench comprising Chief Justice Sanjiv Khanna and Justice Sanjay Kumar said the petitions on the cap of Rs 50 lakh central assistance to treat diseases would be heard by a bench headed by Justice P S Narasimha in the week commencing May 13.